A SONG FOR LIFE SARCOIDOSIS FOUNDATION

A Song for Life Sarcoidosis Foundation advocates Sarcoidosis awareness, education & alternative/natural disease management solutions.

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GLORIA NEWSOME

Renaissance Black Woman Sarcoidosis Warrior

Posted by GLORIA NEWSOME on May 11, 2010 at 10:49pm

GLORIA NEWSOME

LIFE

Posted by GLORIA NEWSOME on May 11, 2010 at 10:45pm

Sheryl Platzer-Sartin

Sigh... Gasp...

Posted by Sheryl Platzer-Sartin on May 8, 2010 at 11:47am — 2 Comments

Fallon D. Mohair

there's hope

Posted by Fallon D. Mohair on May 4, 2010 at 5:36pm — 1 Comment

Lynn

Educate, Educate, Educate

Posted by Lynn on April 28, 2010 at 3:19pm — 1 Comment

Forum

Jaz Owens

PLAQUENIL 2 Replies

Started by Jaz Owens in Uncategorized. Last reply by Jaz Owens May 19, 2010.

creativityfromwithin

Socialgo network 4 Replies

Started by creativityfromwithin in Sample Title. Last reply by Jaz Owens May 4, 2010.

Jaz Owens

Wayne Douglas, Health Consultant

Started by Jaz Owens in Uncategorized Apr 25, 2010.

Martine Caitlan

Leaflets for spreading awareness 1 Reply

Started by Martine Caitlan in Uncategorized. Last reply by Jaz Owens Apr 22, 2010.

Jessica Stasinos

Any recommendations 3 Replies

Started by Jessica Stasinos in Sample Title. Last reply by Vicki Cowan Apr 18, 2010.

 

Members

  • Shelia E (Caldwell) Nicholson
  • Karen Oliver
  • Janet Ziegler
  • Jaz Owens
  • Debra Snell
  • CK Johnson
  • Patricia Proebstel
  • Myra Sims
  • Schameca Brewer
  • Sheryl Platzer-Sartin
  • Patricia Jarrett-Whitaker
  • Gregory Krumme
  • kyle m. clemons
  • Julie Vasquez
  • lorretta a walker
  • Bernie McFarling
  • Angella Thomas
  • Cheryl A. Bruce
  • GLORIA NEWSOME
  • Carolyn Rose Bonner
  • Dwayne
  • Connie Sue Newton
  • Shirley R. Holley
  • wanda
  • FRANCES COPELAND
  • Lynda Stark
  • Fallon D. Mohair

IT'S TIME FOR US TO MOVE OUR NETWORK!!

We are moving... Click here to setup your new account.
The time has come for us to start packing our bags and move on over to our new network home . . .

Click the link above and begin setting up your new profile page. By clicking the link above some of your profile information will be pulled over into the new site as you begin the registration process.

Please be patient during this change over because it will be an adjustment and will take some time to get used to how the new features work.

I pray that each of you will continue to be a part of the ASFL Family & I thank you for your patience and cooperation!

Feel free to email me with any questions or concerns.

~ Jaz Owens, Founder

Notes

Network Update

Hi ASFL Family!

I just wanted to reach out to you and give you an update on why I haven’t been very active on the site and what I have been doing . . . As I announced before, I had to find a new platform for our ASFL network because the current one we are on has made some big changes and is phasing out their “free” networks (which we are).  In order for me to be able to keep things going at…

Continue

Created by Jaz Owens May 18, 2010 at 11:40am. Last updated by Jaz Owens May 18, 2010.

ASFL Foundation Network Will Be Moving!

Hi ASFL Family!

As I am finally getting this network up and running and getting the word out to more people and drawing in new memebers every day, I just found out that I may have to move this network to another platform!

I created this site on this nwtwork because it offered a "FREE" service!  Because the Foundation is still being developed and we don't have any "real" working capital…

Continue

Created by Jaz Owens May 4, 2010 at 3:19pm. Last updated by Jaz Owens May 4, 2010.

Sarcoidosis - A Song for Life!

There is a silent killer out there, plaguing the lives of so many . . . masquerading itself as other conditions (Lupus, Rheumatoid Arthritis and sometimes even Heart Attacks) but it cleverly manifests itself erratically within the cells and organs of innocent bystanders without “fair” warning!! This “mystery” inhabitant is called Sarcoidosis (Sar-coy-doe-sis) and it seeks to destroy! Sarcoidosis has already “secretly” claimed the lives of so many people (those we know and some we don’t) and the list grows daily! It is up to us (Sarcoid suffers along with family & friends who helplessly standby us) to fight against this disease by speaking out loud about it‼ It is our responsibility to shed light on the urgency of this quiet epidemic and find ways to hold it at bay . . . it’s a matter of life & living‼

WHAT IS SARCOIDOSIS (sar-coy-doe-sis)?

Sarcoidosis is an auto-immune disease that produces grain-like lumps called granulomas (formation of inflamed tissue) that usually develop in or near the lungs and causes enlarging of the lymph nodes. Sarcoidosis is known as a multisystemic disorder because it has the ability to affect any system in the body; the lungs, heart, eyes, liver, kidneys, skin and the central nervous system including the brain! Sarcoidosis is not contagious but it can potentially be fatal due to its erratic behavior in the body, the absence of effective treatments that have the ability to control the progression of this disease and the fact that there is NO KNOWN CURE!!

Through "A Song for Life Sarcoidosis Foundation" it is my desire and my personal quest to raise awareness about Sarcoidosis through the personal experiences of sufferers and their families. It is my hope that real life experiences accompanied by current medical research and information about natural alternatives will aid in managing this disease while providing an edge toward beating it.

If you or someone you know suffer from Sarcoidosis please post your thoughts, questions, concerns and most of all your experience with this disease!

Please Speak Out . . . An active voice is more effective than quiet compassion!

~ Jaz Owens, Founder & Sarcoid Suffer

Faces of Sarcoidosis

 
 
 

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Latest Activity

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CK Johnson updated their profile Jul 22, 2010
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CK Johnson updated their profile photo Jul 22, 2010
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Jaz Owens left a comment for Karen Oliver
Karen, thank you for joining the A Song for Life Sarcoidosis Foundation network, we appreciate your presence here and welcome your thoughts, comments and ideas. The more voices we have spreading the word about this disease the more strides we will…
May 30, 2010
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Jaz Owens left a comment for Patricia Jarrett-Whitaker
Patricia, thank you for joining the A Song for Life Sarcoidosis Foundation network, we appreciate your presence and welcome your thoughts, comments & ideas. Please take some time to join in on our discussions in progress or feel free to start a…
May 30, 2010
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kyle m. clemons, Karen Oliver and Patricia Jarrett-Whitaker joined A SONG FOR LIFE SARCOIDOSIS FOUNDATION May 30, 2010
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lorretta a walker left a comment for Jaz Owens
Jaz, I do tend to keep the computer on all day and all night. It is possible that you were trying to reach me at 10:57 pm your time, which is almost 2am on the east coast. I was more likely asleep.
May 26, 2010
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Jaz Owens left a comment for lorretta a walker
Loretta, I was trying to chat with you in the Chat Room . . . Can you see my message?
May 25, 2010
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CHRONICLES of SARCOIDOSIS: A Day in the Life of a Sarcoid Sufferer!

With (April) Sarcoidosis Awareness Month lurking around the corner I had a sudden desire to share my daily emotional and physical experience with Sarcoidosis.I know I'm not the first Sarcoidosis sufferer to chronicle my experience with this treacherous disease, but for some reason the urge fell upon me today to start this Blog!My intention with this is two-fold . . . first and foremost I find it to be somewhat therapeutic, but most importantly it's a direct way to provide the world with a…See More
A blog post by Jaz Owens was featured May 25, 2010

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